Home Dementias Reflections on Living With an Incurable Illness : braincancer

Reflections on Living With an Incurable Illness : braincancer

(I’ve checked with the moderators to make sure this is appropriate and a good fit for this subreddit. I’m a very private person, and have quietly lurked this community for a long time—and am excited to finally create an account because I have something to share myself.)

September 2020 marked four years since the discovery of my brain tumor—one that I soon learned was glioblastoma. My treatment has included surgery, chemotherapy, radiation, immunotherapy, and physical rehabilitation.

Like so many of you, I quickly became acutely aware that life is short. I also became aware of how limited information is about this diagnosis. Not just the limitations of treating this incurable illness, but about navigating the isolating mental toll that it can take.

Though external factors like my treatment team and supportive friends and family have no doubt helped me through these years, I’ve…

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