I thought I’d share some insight for those newly diagnosed or their caregivers, based on what I’ve learned over the past year caring for my wife.
(1) Get evaluated by a neurosurgeon at a leading cancer clinic in a major US city. You want to be evaluated by a person who is dealing with brain tumors all of the time and is seeing them by the hundreds or thousands. Experience matters. I’m talking about places like:
MD Anderson (https://www.mdanderson.org) in Houston
UPenn’s Perelman Cancer Center (https://www.pennmedicine.org/for-patients-and-visitors/penn-medicine-locations/perelman-center-for-advanced-medicine) in Philadelphia
Sloan Kettering (https://www.mskcc.org/research-programs/brain-tumor) in NYC
Johns Hopkins (https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/brain_tumor/) in Baltimore
Cleveland Clinic (
